Announcement re: Federal Govt Data
U.S. government sites are modifying some data, and some datasets may not be accessible on the site. Look for a notice like this on visible web pages.
To search for websites/datasets that appear to be inaccessible, check the resources on the individual tabs.
Finding Government Information during the 2025 Administration Transition: https://libguides.umn.edu/
From KFF: A Look at Federal Health Data Taken Offline: https://www.kff.org/policy-watch/a-look-at-federal-health-data-taken-offline/
To search across sites, from Boston University: https://www.FindLostData.org
The Data Rescue Project's Data Rescue Tracker: https://www.datarescueproject.org/data-rescue-tracker/
Internet Archive: https://web.archive.org/ Search by URL, if you have it, or by dataset or organization name, then click on the most recent date on the calendar of results. Data is from the end of administration project that they produce every 4 years (in this case, 28 Jan 2025).
Policy Map: https://www.policymap.com/blog/purged-federal-agency-data-available Including data from CDC PLACES (Population Level Analysis and Community Estimates), the Social Vulnerability Index (SVI), the Climate & Economic Justice Screening Tool (CEJST), & others.
ICPSR: is saving CDC data https://www.icpsr.umich.edu/web/pages/ICPSR/index.html
Preserving Public U.S. Federal Data: https://lil.law.harvard.edu/blog/2025/01/30/preserving-public-u-s-federal-data/ (data not currently available until spring)
Health Map
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HealthMap: Global Disease Alert MapCombines data sources to demonstrate the state of infectious diseases & their effect on human & animal health. Search by disease or location.
Incidence & Prevalence Database
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Incidence and Prevalence Database (IPD) 2009 - 2013 onlyIncludes summaries of incidence & prevalence data for particular diseases or procedures for the U.S. & internationally. Includes 6-year U.S. trend data for hospital inpatients & outpatients, physician office visits, & emergency department visits.
Project Tycho
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Project TychoDatabase of the weekly Nationally Notifiable Disease Surveillance System (NNDSS) reports for the U.S. (Level 3 data); a major part of these data standardized for online access (Level 2 data); & a subset of the U.S. data cleaned further to study the impact of vaccination programs in the U.S. (Level 1 data).
SEER
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SEER: Suveillance,Epidemiology, & End Results ProgramFrom the National Institutes of Health.
WHO Cancer Incidence, Mortality, & Survival
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GLOBOCANProvides contemporary estimates of the incidence,, mortality, prevalence and disability-adjusted life years (DALYs) from major type of cancers, at the national level, for 184 countries. From WHO's International Agency for Research on Cancer.
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ICBP SURVMARK (WHO)Data from the Cancer Survival in High-Income Countries Survey. Includes survival, incidence, &mortality across countries, over time, & more.