Announcement re: Federal Govt Data
U.S. government sites are modifying some data, and some datasets may not be accessible on the site. Look for a notice like this on visible web pages.
To search for websites/datasets that appear to be inaccessible, check the resources on the individual tabs.
Finding Government Information during the 2025 Administration Transition: https://libguides.umn.edu/
From KFF: A Look at Federal Health Data Taken Offline: https://www.kff.org/policy-watch/a-look-at-federal-health-data-taken-offline/
To search across sites, from Boston University: https://www.FindLostData.org
The Data Rescue Project's Data Rescue Tracker: https://www.datarescueproject.org/data-rescue-tracker/
Internet Archive: https://web.archive.org/ Search by URL, if you have it, or by dataset or organization name, then click on the most recent date on the calendar of results. Data is from the end of administration project that they produce every 4 years (in this case, 28 Jan 2025).
Policy Map: https://www.policymap.com/blog/purged-federal-agency-data-available Including data from CDC PLACES (Population Level Analysis and Community Estimates), the Social Vulnerability Index (SVI), the Climate & Economic Justice Screening Tool (CEJST), & others.
ICPSR: is saving CDC data https://www.icpsr.umich.edu/web/pages/ICPSR/index.html
Preserving Public U.S. Federal Data: https://lil.law.harvard.edu/blog/2025/01/30/preserving-public-u-s-federal-data/ (data not currently available until spring)
General Disease-Specific Sources
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Biologic Specimen & Data Repository Information Coordinating Center (BioLINCC)Coordinates searches for data & bio-specimens. From the National Heart, Lung, & Blood Institute.
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Disease Control Priorities ProjectProduces information on specific health issues, such as reproductive health, cancer, & mental disorders. From the Univ. of Wash. Dept. of Global Health & Inst. for Health Metrics & Evaluation.
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Global Burden of DiseaseUses the disability-adjusted-life-year (DALY) that assesses the burden of disease consistently across diseases, risk factors, regions.
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Global Health Observatory (including WHOSIS)Data & analyses for monitoring global health. From the World health Organization.