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Library Research Guides

Research Data Management (Health Sciences)

Federal Sources for Health Science Data

The National Library of Medicine maintains a comprehensive list of healthcare data sources.

Other federal sources:

  • AHRQ - Agency for Healthcare Research and Quality
  • BTRIS - Biomedical Translational Research Information System
  • CDC - Centers for Disease Control and Prevention
  • Census Bureau
  • CMS - Centers for Medicare and Medicaid Services
  • DOL - Department of Labor
  • NAIC - National Association of Insurance Commissioners
  • NCHS - National Center for Health Statistics
  • NCI - National Cancer Institute
  • NHLBI - National Heart, Lung, and Blood Institute
  • NIDA - National Institute on Drug Abuse

Data Repositories

DataMed -  a prototype biomedical search engine for finding datasets across multiple repositories and providing information about them. DataMed is designed to be, for data, what PubMed has been for scientific literature.

Dryad - an international, curated repository of data underlying scientific and medical publications.

 Data repositories recommended by Nature

Directories of data repositories:

Other Sources of Health Science Data

ICPSR (The Inter-university Consortium for Political and Social Research) maintains a data archive of more than 250,000 files of research in the social and behavioral sciences. ICPSR hosts several specialized collections of health science data, including

  • AHRQMCC - Multiple Chronic Conditions Research Archive
  • ADDEP - Archive of Data on Disability to Enable Policy
  • HMCA - Health and Medical Care Archive
  • NAHDAP - National Addiction & HIV Data Archive Program 
  • NACDA - National Archive on Computerized Data on Aging